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Svenska

28.06.21

1 min read

WTF: Kronisk sjukdom med Char Victory

Säsong 1 Avsnitt 5

Kronisk sjukdom 💜

I femte avsnittet av What The Fluff har vi Charleigh, som gästar Estrid för att dela med sig av sina erfarenheter med kronisk sjukdom. Charleigh är diagnostiserad med multipel skleros (MS) och Graves sjukdom. Hon berättar om allt som ledde till diagnoserna och hur de har påverkat hennes liv. Charleigh vill dela med sig så att hon kan sprida lite hopp till andra som också lever med en kronisk sjukdom.

Vad är “What The Fluff”?

Det bästa sättet att skapa förståelse och empati mellan människor är att prata om saker. Dem viktiga, svåra sakerna. Därför skapade Estrid ”What The Fluff”: en IGTV serie där vi bjöd in olika profiler för att prata om svåra saker. Från att bekämpa ätstörningar, till hur det är att leva med en kronisk sjukdom, och vikten av att stötta unga transpersoner - våra gäster har delat med sig om sina personliga erfarenheter kring en mängd olika ämnen, och hjälpt oss skapa en trygg miljö att prata i.

Klicka här för att läsa en transkribering 👀

Hello, my name is Charleigh. I'm 25 years old, I'm a curly hair, chronic illness, and lifestyle blogger, and today I'm here with Estrid to talk all things chronic illness, specifically my own illnesses, which are multiple sclerosis or MS, as you may know it, and also Graves Disease, which a lot of people look at me confused because no one knows what that is, but today I am going to explain it to you. So both MS and Graves disease are autoimmune conditions. And what that basically means is when we're ill our immune system attacks our own body parts instead of attacking the germ that's causing the infection.

So, for example, with MS, my immune system attacks my brain and my spinal cord. And with Grave's disease, my immune system attacks my thyroid. So it's extremely important to try and avoid getting poorly because our bodies and our immune system just can't understand that it needs to fight the infection instead of fighting itself, essentially. I thought I would touch on my diagnosis and how that came about. So with MS, I was diagnosed in 2017, 12th of October 2017, if we're going to be specific.

And I was 22 years old. And as you can imagine, it completely flipped my world upside down. I wasn't expecting to be told that I... I don't really know what I was expecting when I fell poorly. But a lifelong chronic illness wasn't it. The first symptom that I remember getting was back pain, lower back pain. And then I started to get headaches that moved on to migraines. And I went to the doctors about them, they were kind of dismissed.

I was told that I just get migraines and to deal with it. Then one day I woke up in June of 2017 and I couldn't see out of my left eye. I woke up and I had this feeling of needing to, like, scratch my eye. All I saw was grey, like a grey, smoky, smudgy cloud. So I went to the opticians. They sent me to the hospital because they were aware of the fact I couldn't see. And then I had an MRI booked for me a few weeks later. In between the time of me having the brain MRI scan and to the day I was diagnosed, I did develop more symptoms.

So the symptoms that I started to develop alongside obviously not being able to see out of my left eye, were pins and needles down my arms, so literally from my shoulders down to my fingertips and whenever I bent my neck forward, an electric shock-like feeling shot down my neck, down my spine, back of legs all the way down to my feet. At this point, I was so fatigued I couldn't go to work anymore. I barely, barely even got out of bed. And it was strange because my brain could actually function.

So everything was normal inside my head. But it was like my body had been sucked out of its shell. And I was just this shell, this shell of myself that just wasn't me. And there needs to be absolutely no reason for it. I think when I was first diagnosed, I struggled with getting my head around the fact that I haven't done anything wrong. It's not my fault that I've become ill. Because MS is a chronic illness that means, sadly, there is no cure as of yet.

But there are a number of drugs and treatments that help slow down the progression of the disease. And I had a disease-modifying drug called Lemtrada, which has done absolute wonders for my MS and I couldn't be more grateful for that. But because Lemtrada is actually a form of chemotherapy, there are a number of side effects that come along with the treatment. And I unfortunately got one of them, which is Grave's Disease. And Grave's Disease is the autoimmune condition that causes an overactive thyroid.

What I want people to know, who don't have M.S. or don't have any type of chronic illness, is that they actually call MS the snowflake disease because no two MS's are the same. So that's something to keep in mind. If you're going through a diagnosis, whether that's for MS, Graves disease, or any type of chronic illness and you feel like your life is coming to a halt, I promise you now it does get better, but time honestly is the best healer. And as time moves on, you become stronger and you just learn how to deal with it.

You think you never will, but you will, I promise you, and you will laugh again. You will smile, you'll laugh and you'll be happy. Thank you so much for listening to my story and a big thank you to Estrid for inviting me onto your channel to talk all things chronic illness as a part of What The Fluff.

Nu får du belöning när du bjuder in vänner! Ge , och få genom att bjuda in vänner som inte redan är del av Estrid-familjen.